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Kathy: How I Deal with the Fear of Metastatic Breast Cancer

My name is Kathy and I have been metastatic for 9 1/2 years. I have been one of the very fortunate women who had a miraculous response after taking Taxol and Herceptin for several years. I have been "NED" (no evidence of disease) for several years and have been off all medication for two years.

Several weeks ago, I had a swelling in the middle of my breasts. The swelling was soft and initially I didn't think too much about it. But after several days, when it didn't go away and I kept feeling it, I realized the middle part of it was hard. I panicked.

I called my oncologist, who recommended that I see my surgeon. I hadn't had contact with my surgeon for eight years, and now he is affiliated with a different cancer center from where I am being treated. I managed to make an appointment with a new surgeon affiliated with the cancer center where I am currently being treated. He did a biopsy, which turned out negative.  But because there is a growth, a Pet Scan was taken. Thankfully, the results were normal, but it raised some concern.

What I've learned from this experience is that fear can return so easily when these situations occur. But how I handle the fear now is different. Now, I take action; I question my options and push for or request what I need. I try to keep a positive outlook.

I do rehearse in my mind how I would deal with bad news. This method of rehearsing the bad news prepares me and keeps me sane.

I talk to myself the way I would talk with a caller on the SHARE Hotline. I realize and acknowledge the fear and assure myself that no matter what the results are, I will be able to handle it with some dignity. Working on the Hotline has been tremendously rewarding and a growing experience.

Kathy has been working on SHARE's breast cancer hotline for over two years.  She answers calls from women dealing with all types of breast cancer, including metastatic disease.
 

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Me llamo Maria tengo 34 anos yo fui diagnosticada con cancer de seno metastico en abril del2010 me siento con mucho animo de seguir luchando al leer sobre esta historia de supervivencia de 9 anos quisiera felicitarle por este bonito mensaje de seguir luchando contra el cancer ya que esta enfermedad nos vuelve mas fuertes me gustaria ver en esta pagina mas historias de persanas que actualmente estan pasando por una etapa similar a la mia que es cancer metastico y por ultimo quisiera decirle que tengo 3 ninos por quien voy a continuar luchando con la ayuda de DIOS en primer lugar y luego con personas como ustedes que dedican su tiempo para ayudar y dar esperanza de vida a muchas mujeres con cancer de seno gracias.

— MARIA E A P

 
I am so happy that you shared this thought with us . Fear has taken over a few times in the last 4 years , since I have been diagnosed with stage 4 breast cancer .Metastisis to the hip requiring total hip replacement , mastectomy ,and ongoing monthly chemo . The way that I overcome my fear , is to pray while waitng for a report to be given and that prayer is to God saying" help me accept what this news is going to be" Fear can be conquered , God bless you for this testimonial

— lela

 
Dear Lela: Thank you for you comment about how you deal with fear. I, too, often pray and I find that sitting in church and thanking God for all the good things in my life helps too. I also ask for help in accepting the challenges that face me in the future. Regarding fear - it never goes away - my oncologist's nurse called me yesterday with my tumor marker results, which fortunately were normal. But, this morning my oncologist called and I was panic stricken hearing her voice on the phone. She was only calling to say that my postasium level was slightly elevated but that it was nothing. It is amazing to me, that despite the fact that I knew all was well that just hearing my oncologist's voice on the phone made my heart skip a beat.

Kathy Hynes-Kadish

— Kathy

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