SHARE is proud to be part of an important initiative headed by Georgetown Lombardi Comprehensive Cancer Center to study a quality-of-life intervention program targeting Latina breast cancer survivors and their caregivers. The study is being funded by the Patient Centered Outcomes Research Institute (PCORI), a nonprofit organization authorized by Congress.
The study evaluates the impact on Latina patients of providing support groups to their caregivers, a program that was developed by Latina survivors at Nueva Vida, a DC-area nonprofit organization that serves this population. Many Latinas face language and health barriers, as well as cultural beliefs that cancer leads to death, and caregivers often feel they don't have the skills to offer support.
This collaboration is a great opportunity for SHARE to participate in an exciting approach to research that actively involves patients and ensures real-life experience guides the work. Like all initiatives funded by PCORI, the goal is to provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed health care decisions.
SHARE Senior Program Director Ivis Febus-Sampayo has been named Principal Investigator, SHARE LatinaSHARE Co-Director Jennie Santiago is serving as Project Manager/Interventionist, and SHARE's Olympia Cepeda is Research Coordinator/Interventionist.
The project is led by Kristi Graves, PhD, an assistant professor of oncology at Georgetown Lombardi. In addition to SHARE/LatinaSHARE and Nueva Vida, two other organizations are also collaborating on the project: Latinas Contra Cancer (San Jose, California) and Gilda's Club New York City.