At its annual meeting this year in June, the American Society of Clinical Oncology (ASCO) gave patient advocates an update on the TAPUR clinical trial, which is its first trial. The trial was rolled out about two years ago.
The TAPUR trial (Targeted Agent and Profiling Utilization Registry) allows us to obtain FDA-approved drugs free-of-charge by cutting out the red tape when we are no longer benefiting from any standard treatment. In just taking a drug, we are considered as being enrolled in TAPUR. We can continue to use the drug as long as it is working.
ASCO is working hard to expand TAPUR across the county, not only to major medical centers but also to local community hospitals. They also want to make it easy for hospitals to become trial sites and patients to participate in the trial.
TAPUR now has 101 sites in 20 states, up almost threefold from last year. TAPUR recently added eight centers in 36 locations:
- Fox Chase Cancer Center – Pennsylvania, 1 site
- Inova Schar Cancer Institute, Inova Health System – Virginia, 6 sites
- Sutter Cancer Research Consortium – Northern California, 9 sites
- The Angeles Clinic and Research Institute, a Cedars Sinai Affiliate – Southern California, 3 sites
- The University of Texas MD Anderson Cancer Center – Texas, 5 sites
- The University of Alabama at Birmingham Comprehensive Cancer Center – Alabama, 1 site
- Sylvester Comprehensive Cancer Center, University of Miami – Florida, 7 sites
- Winship Cancer Institute of Emory University – Georgia, 4 sites
A total of 17 drugs yielding 15 different targeted options for therapy are available. In TAPUR, patients can try drugs based on genomic test results, and ASCO is still looking at ways to obtain funds to help patients cover the cost of the test when insurance is not sufficient. However, if you already have had the test, the results may be viable.
Learn more about TAPUR and how it works by reading last year’s story in Mets Matters https://www.sharecancersupport.org/2016/07/ newly-launched-tapur-provides-options/ and visiting the TAPUR website. http://www.tapur.org.
by Joan Mancuso