March Resource Roundup
Welcome to our monthly resource roundup! Each month, we’ll be curating study opportunities, new clinical trials, research results, news articles, personal perspectives, and upcoming events of interest to women and families affected by breast, ovarian, or metastatic breast cancer. Below are some links you might find useful.
Breast, Ovarian, and Metastatic Breast Cancer:
All of Us: Research Program for Personalized Treatment
All of Us is a new research program from the National Institutes of Health (NIH) that hopes to advance precision medicine: health care that is based on you as a person. Precision medicine takes factors like where you live, what you do, and your family's medical history into account when studying each individual. Precision medicine's goal is to tell people the best ways to stay healthy, and help health care systems find treatments that will work best according to the individual.
9th Annual National Conference on Work & Cancer
Join the National Conference on Work & Cancer on June 21, 2019 at the Graduate Center at CUNY in NYC. This free, all day conference will explore issues faced by those who balance their cancer treatment and recovery with employment, and is open to anyone and everyone who has been touched by cancer. To register for the event, click here.
Statement of Improvement to USPSTF Regarding BRCA Gene Testing Recommendations
SHARE, among many others, has co-signed this statement to the U.S. Preventive Services Task Force regarding their recommendations for risk assessment, genetic counseling, and genetic testing of BRCA related cancers. To further improve the drafted statement from the U.S. Preventive Services Task Force, this statement suggests extending the evaluation to include multi-gene panel testing, men, and more. To read the full statement, click here.
Metastatic Breast Cancer
A roundup of resources specific to metastatic breast cancer. Find personal stories, research news, new trials, and more. In research & support, you'll find that SHARE is mentioned alongside other highly respected metastatic breast cancer resources, in both English and Spanish.
The Price Of A Bad Cancer Metaphor, by Dr. Dheeraj Raina for Left Boob Gone Rogue
After his wife, Dr. Uzma Yunus, passed away from Stage 4 breast cancer in January of 2019, Dr. Raina writes about the downfall of comparing metastatic breast cancer to a "chronic disease".
"It is ludicrous to compare stage 4 cancer to chronic disease. Half of the women with stage 4 breast cancer die within three years of diagnosis. Only one fifth make it past five years. I believe that using this inappropriate metaphor makes oncologists convey a false sense of hope and delays conversation about hospice."
Integrative Medicine Conference for Breast Cancer
An integrative medicine conference is being held by nonprofit Breast Cancer Options at SUNY New Paltz Lecture Center on April 27, 2019. It will discuss nutrition for cancer, stress reduction techniques, finding help for the financial costs of cancer, and more. Register here. For more information email hopenemiroff at yahoo.com.
A visual diary of one couple's journey through breast cancer diagnosis and treatment by Jordan Rathkopf for Click
Jordan Rathkopf created a photo project to document the entire journey his wife, Anna Rathkopf, after she was diagnosed with breast cancer.
“I remember the very next morning after I woke up it was snowing,” says Anna. “I always loved snow, the peacefulness and the beauty of the muffled sounds and the stark contrast of the white to any colors. That morning I came to Jordan and told him we have our project. I told him I wanted to document all of it.”
This Is How One Woman Found Strength in A Cancer Diagnosis, by Allie Hoff Kosik for Brit + Co
Freelance editor Jennifer Garam discusses how she was diagnosed with ovarian cancer, and how strength, love, and community are getting her through.
"Most importantly, I’ve learned how strong I am. I had no idea that I had this incredible inner strength until I had to face this incredible challenge."
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