July Resource Roundup
Welcome to our monthly resource roundup! Each month, we’ll be curating study opportunities, new clinical trials, research results, news articles, personal perspectives, and upcoming events of interest to women and families affected by breast, ovarian, or metastatic breast cancer. Below are some links you might find useful.
Breast, Ovarian, and Metastatic Breast Cancer:
Untire is the app created by Tired Of Cancer, which helps combat the extreme fatigue cancer patients and survivors feel during and after treatment. It is the first comprehensive app of its kind, which provides support to patients and survivors that suffer from extreme fatigue. For more information, and to download the app for iOS and Android, visit their website at tiredofcancerapp.com
On August 21 from 3-5pm, a free presentation on managing medical debt for cancer patients and survivors will be held at the NYC Bar Association. You must register with Alexa Tovar at 212-382-4743 by August 9 to attend. For more information, see the informational flyer.
Jennifer Garam, diagnosed with stage III ovarian cancer, talks about her diagnosis, her cancer stories, and her perspective on being single through it all. A Single Serving Podcast, hosted by Shani Silver, is available on iTunes, Spotify, or on her website at shanisilver.com. Jennifer's episode can be found and listened to here.
If you missed OCRA's National Conference earlier this month, live stream videos are available on their website. Learn about new advancements in ovarian cancer treatment, immunotherapy for ovarian cancer, answers from an expert, and more. To view all of the videos, click the link here.
This documentary follows four women: Doris, Carol, Shelia, and Debra, who have all undergone mastectomies, and shows how the aftermath of breast loss has affected them all. The first ten people to fill out this form here will receive a free DVD copy of the documentary. For more information, go to thegoodbreast.com, and to rent or purchase the film yourself, it is available on Amazon.com, iTunes, or on DVD.
Metastatic Breast Cancer
MBC Connect is an interactive app, accessible on the web and from your mobile device, that allows you to store your information on your MBC disease, history, experiences, and quality of life. This information will in turn help researchers and clinicians create a powerful database for research and discoveries in the MBC community. For more information and to download the app or visit the website, click the link here.
Metastatic Trial Talk's First Anniversary special edition is live on their website and features news on new research, clinical trials, personal stories, information on resources and support, plus so much more. Head to metastatictrialtalk.org to see the newest information for July/August 2019.
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