August Resource Roundup
Welcome to our monthly resource roundup! Each month, we’ll be curating study opportunities, new clinical trials, research results, news articles, personal perspectives, and upcoming events of interest to women and families affected by breast, ovarian, or metastatic breast cancer. Below are some links you might find useful.
Breast, Ovarian, and Metastatic Breast Cancer:
Learn the basics of immunotherapy from medical experts and patients as they discuss how research and patient participation in clinical trials is helping us get closer to a cure for cancer. People of all ages and cancer types are encouraged to attend this free half-day event on Saturday, September 7, from 10am-3pm. Get tickets for this event with the link here.
This month, SHARE is spreading awareness and educating women on ovarian cancer with the #IWishIKnew campaign. Anyone affected by ovarian cancer is encouraged to join and share what they wish they knew about ovarian cancer to spread knowledge and awareness about the disease. Read more about the campaign and learn how you can help on our website here.
Ovarian Cancer Drug Offers Patients Hope - and a Longer Life
by Jessica Skarzynski
Heavily pre-treated ovarian cancer patients may have a new treatment option on the horizon, according to The Lancet Oncology. Zejula (niraparib), is a PARP inhibitor that can prevent cancer cells from repairing their damaged DNA, and it may extend the lives of women with ovarian cancer who have undergone four or more rounds of chemotherapy. To learn more about this new drug and to read the article in full, click the link here.
Using the hashtag #gyncsm on Wednesday, September 11 at 9pm ET, those affected by breast or ovarian cancer can take part in a chat on Twitter that can provide valuable information to previvors, survivors, families, and caregivers about the hereditary/genetic connections of breast and ovarian cancer. To participate, log into your Twitter account, create your tweet, and use the hashtag #gyncsm. Then search the tag to see what information others have shared.
A study is now accepting participants who chose to have a mastectomy after being diagnosed with breast cancer to better understand what factors men and women find most important when considering different surgical treatment options. Click here to read more about the study and to see if you qualify.
Using the #gyncsm on Wednesday, September 11 at 9pm ET, those affected by breast or ovarian cancer can take part in a chat on Twitter that can provide valuable information to previvors, survivors, families, and caregivers about the hereditary/genetic connections of breast and ovarian cancer. To participate, log into your Twitter account, create your tweet, and use the hashtag #gyncsm. Then search the tag to see what information others shared.
Metastatic Breast Cancer
Metastatic Trial Talk has a curated list of clinical trials for women facing metastatic breast cancer, as well as specific trials for women with triple-negative breast cancer, HR+ breast cancer, HER2+ breast cancer, and more. To see the full July/August 2019 updated list, click the link to their website here.
A book dedicated to helping metastatic breast cancer patients and their families cope with the complexities of MBC, this free downloadable PDF provides information on cutting edge research, scientific studies, approved therapies, clinical trials, and more. This book can be turned to at any point in your MBC experience and can be downloaded on the MBC Alliance website here.
A free, two-day conference for women with metastatic breast cancer and their caregivers starts on Saturday, October 5. The conference will discuss what is new in MBC treatment, and also provides patient support opportunities. Registration is required to attend. Click the link here for more information and to register for the conference.
The first issue of the PROMISE Newsletter is now live and discusses the Mayo Clinic's PROMISE clinical trial for women with advanced-stage breast cancer, which looks at why hormone-receptor positive breast cancers become resistant to treatments. It also hopes to develop better treatment options for these patients. For more information on the clinical trial, watch their informative YouTube video here.
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