Welcome to our monthly resource roundup! Each month, we curate study opportunities, new clinical trials, research results, news articles, personal perspectives, and upcoming events of interest to women and families affected by breast, ovarian, or metastatic breast cancer. Below are some links you might find useful.
Breast, Ovarian, and Metastatic Breast Cancer:
Men and women of Ashkenazi Jewish descent have a 1 in 40 chance of having a BRCA mutation. The BFOR Study is providing genetic mutation tests for men and women age 25 or older with at least one grandparent of Ashkenazi Jewish ancestry. Registration for this study ends December 31, 2019, so if you are interested click the link here to sign up.
Dr. Pamela Ayo Yetunde of the United Theological Seminary is conducting a study to see how spirituality affects women's decisions to seek cancer treatment. If you are interested in participating, an online survey can be completed with the link here.
The Atlantic's annual "People v Cancer" event is happening on Tuesday, November 12, and will be discussing medicine, clinical trials, immunotherapy and more with influential people in the cancer community including journalists, professors, scientists, and survivors. Register to join this event with the link here.
This video, along with a verbatim transcript, covers all of the highlights from ESMO 2019 with Sumanta Kumar Pal, MD and Shannon N Westin MD, MPH. PARP inhibition, along with three prominent studies, is discussed in this video, along with an in-depth discussion on how the trials are similar and different in certain ways. Watch the full video with the link here.
The University of California is conducting a study on lymphedema to see if there are genetic factors involved with the disease. If you or someone you know is a breast cancer survivor with lymphedema, you may be eligible to participate in this study and receive compensation. For more information, please read this informative flyer on the study or contact Mount Sinai representatives at 212-241-8055 or at [email protected]
Beyonce's Dad Has a Mutation More African-Americans Should Be Tested For
By: Erika Stallings, The New York Times
Matthew Knowles's breast cancer diagnosis came from BRCA2 genetic mutation, which his four children now have a 50% chance of inheriting. Author Erika Stallings discusses her own personal experience with the BRCA2 mutation while shedding a light on how important genetic testing is for the African-American community. To read the full opinion piece from The New York Times, click the link here.
This book in PDF format by Rethink Breast Cancer helps you discover easier ways to talk to your children about your breast cancer diagnosis. Helpful tips include using simple language, reactions to change, hospital visits and more. This free book can be accessed with the link here.
Metastatic Breast Cancer
An article on Wildfire Magazine's online website that discusses things women with Metastatic Breast Cancer might understand, but the ones around them might not. The article discusses misunderstandings in MBC treatment, diagnosis, how one gets metastatic breast cancer, and more. Click here to read the full article.
Navigating metastatic breast cancer with children presents its own unique trials and tribulations. This book, written by Child Life Specialist Morgan Livingstone, offers tools and tips on talking to your children openly and honestly about metastatic breast cancer, from diagnosis, to stages, treatment, and end of life planning. You can read the entire book for free with the link here.
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