December Resource Roundup

December Resource Roundup

Welcome to our monthly resource roundup! Each month, we curate study opportunities, new clinical trials, research results, news articles, personal perspectives, and upcoming events of interest to women and families affected by breast, ovarian, or metastatic breast cancer. Below are some links you might find useful.

Breast, Ovarian, and Metastatic Breast Cancer: 

Scientists Are Just Beginning to Understand Mysterious DNA Circles Common in Cancer Cells
The New York Times

Writer Carl Zimmer discusses new research that focuses on extrachromosomal DNA, which is extra circles of DNA that float around our chromosomes. These DNA circles were discovered five years ago, and scientists didn't know what to make of them - until now. Research now shows that they are common in cancer cells and tend to play a bigger role in many different types of cancer. For more information and to read the entire article, click here.

Living with chronic illness: Why some cope and others don’t
Knowable Magazine 

Katherine Ellison sits down with psychologist Vicki Helgeson of Carnegie Mellon University to discuss chronic illness, depression, and why people tend to react differently to their diagnosis. Helgeson explains that a diagnosis of a chronic illness can take a toll on how someone sees themselves, and can completely disrupt a daily routine that they are used to. The article also cites findings from the Mayo Clinic that show 42% of those living with cancer suffer from major depression. Click here to read the entire article.

Ovarian Cancer

PARP Inhibitor Experience Survey

This survey is seeking ovarian cancer survivors who have taken one or more PARP Inhibitors and are willing to share their experiences. Conducted by ovarian cancer advocates Annie Ellis and Kathleen Maxian, the purpose of this study is to look into women's experiences with PARP Inhibitors and use this information for ovarian cancer research and advocacy in the future. Click here to participate in the survey or to see if you qualify.

Cancer Network's Ovarian Cancer Year in Review

Cancer Network's compiled list of ovarian cancer resources from 2019 can be viewed on their website here, which discusses gene expressions, FDA approved medications and tests, as well as statistical information on ovarian cancer rates.

Breast Cancer

CURE Magazine's San Antonio Breast Cancer Symposium 2019 Highlights

The San Antonio Breast Cancer Symposium (SABCS) is a yearly symposium dedicated to sharing the most up-to-date information regarding the biology, prevention, diagnosis, and therapy of breast cancer. CURE Magazine has compiled some important highlights from this year's symposium, which took place on December 10-14 of 2019, on their website here, which includes information on medication, hormone therapy, advocacy, and more.

National Breast Cancer Coalition's 2020 Advocate Leadership Summit in Washington DC

NBCC's 2020 Advocate Leadership Summit is a breast cancer advocacy event that will be taking place in Washington DC, May 2-5. The event will offer discussion sessions with top researchers, as well as skill-building, message training, networking opportunities, and more to build strength and make connections for the year to come. For more information on the event and to buy tickets, visit their website here.

Metastatic Breast Cancer

Stage IV, HER2-Negative Women Needed for Trial Testing Neratinib

This study is looking to see if neratinib is effective in treating HER2-negative metastatic tumors that have a specific type of genetic mutation (ERBB2). During the first part of the study, your tumor tissue will be tested to see if it has the specific mutation researchers are hoping to study. If it does, you will be contacted regarding more information on the study. To sign up for this study or to read more information on it, click here.

MBCProject Launches Patient Data Browser

Metastatic Breast Cancer Project's Patient Data Browser is an interactive tool that allows women with MBC to find others in the MBCProject and learn more about their experiences with metastatic breast cancer. You can explore survey data like receptor status, metastatic sites, treatment, and diagnosis details all from this data browser. To learn more about MBCProject and this new launch, click here.

Metastatic Trial Talk's December 2019 Issue

A new issue of Metastatic Trial Talk's monthly portal has been posted and features new information and resources for women with metastatic breast cancer. This month, you can discover new trials available for women with MBC, read up on what was discussed at the San Antonio Breast Cancer Symposium, and so much more. Click here to see everything new in December.

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